Living in a rural community and researching HIV and AIDS: Positionality and ethics
- Akhurst, Jacqueline E, Van der Riet, Mary B, Sofika, Dumisa
- Authors: Akhurst, Jacqueline E , Van der Riet, Mary B , Sofika, Dumisa
- Date: 2018
- Subjects: To be catalogued
- Language: English
- Type: text , book chapter
- Identifier: http://hdl.handle.net/10962/436907 , vital:73315 , ISBN 978-3-319-74721-7 , https://doi.org/10.1007/978-3-319-74721-7_14
- Description: The emotional impact of researching sensitive topics is under-reported. This chapter explores researcher positionality in a study of people’s management of risk in sexual activity where there is a high prevalence of HIV infection. Living in a rural community raised insider/outsider issues as the researchers participated in broader social life, adding relational and emo-tional dimensions to the process. Exploring the sensitive topic of HIV and AIDS in a resource-constrained context led to blurred boundaries as researchers also became confidante, counsellor or development worker. They were challenged by the emotional intensity of the research and related responsibili-ties, illustrating the need for enhanced ethical awareness that could not be pre-determined and highlighting the need for on-going risk assessment for both participants and researchers.
- Full Text:
- Date Issued: 2018
- Authors: Akhurst, Jacqueline E , Van der Riet, Mary B , Sofika, Dumisa
- Date: 2018
- Subjects: To be catalogued
- Language: English
- Type: text , book chapter
- Identifier: http://hdl.handle.net/10962/436907 , vital:73315 , ISBN 978-3-319-74721-7 , https://doi.org/10.1007/978-3-319-74721-7_14
- Description: The emotional impact of researching sensitive topics is under-reported. This chapter explores researcher positionality in a study of people’s management of risk in sexual activity where there is a high prevalence of HIV infection. Living in a rural community raised insider/outsider issues as the researchers participated in broader social life, adding relational and emo-tional dimensions to the process. Exploring the sensitive topic of HIV and AIDS in a resource-constrained context led to blurred boundaries as researchers also became confidante, counsellor or development worker. They were challenged by the emotional intensity of the research and related responsibili-ties, illustrating the need for enhanced ethical awareness that could not be pre-determined and highlighting the need for on-going risk assessment for both participants and researchers.
- Full Text:
- Date Issued: 2018
Whose PARty was this? The dilemmas of a participatory action research process of evaluating a social enterprise.
- Lovell, Jacqueline, Akhurst, Jacqueline E
- Authors: Lovell, Jacqueline , Akhurst, Jacqueline E
- Date: 2018
- Subjects: To be catalogued
- Language: English
- Type: text , book chapter
- Identifier: http://hdl.handle.net/10962/436926 , vital:73317 , ISBN 978-3-319-74721-7 , https://doi.org/10.1007/978-3-319-74721-7_24
- Description: Participatory action research aims to reduce power differentials in research. In this chapter we problematise the blurred boundaries when a participant becomes a researcher. We re-flect on a PhD undertaken by the first author who was a mem-ber of a social enterprise in the UK that provided user-led re-search and training with a diversity of communities. Experienc-es of ten members of the collective were gathered through creative arts-based methodologies designed to be inclusive. We describe three tensions that arose when trialling participa-tory video production, when data analysis could not be under-taken collaboratively, and when reflecting on the solitary nature of PhD thesis writing. We outline the ways these tensions were worked through and explore ways of writing about participatory research in a PhD thesis.
- Full Text:
- Date Issued: 2018
- Authors: Lovell, Jacqueline , Akhurst, Jacqueline E
- Date: 2018
- Subjects: To be catalogued
- Language: English
- Type: text , book chapter
- Identifier: http://hdl.handle.net/10962/436926 , vital:73317 , ISBN 978-3-319-74721-7 , https://doi.org/10.1007/978-3-319-74721-7_24
- Description: Participatory action research aims to reduce power differentials in research. In this chapter we problematise the blurred boundaries when a participant becomes a researcher. We re-flect on a PhD undertaken by the first author who was a mem-ber of a social enterprise in the UK that provided user-led re-search and training with a diversity of communities. Experienc-es of ten members of the collective were gathered through creative arts-based methodologies designed to be inclusive. We describe three tensions that arose when trialling participa-tory video production, when data analysis could not be under-taken collaboratively, and when reflecting on the solitary nature of PhD thesis writing. We outline the ways these tensions were worked through and explore ways of writing about participatory research in a PhD thesis.
- Full Text:
- Date Issued: 2018
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